Additional helpful information
Having PAH can be a challenge. It is important that you have access to information you can rely on. There are many resources available—here are just a few to help you get started.
Pulmonary Hypertension Association
A leading source of news and updates for people living with pulmonary hypertension, PH caregivers, and the professionals who treat people with PH. To learn more, visit phassociation.org.
Founded by a group of pulmonary hypertension awareness activists. Made up of patients, caregivers, and medical professionals, the mission of PH Aware is to create global pulmonary hypertension awareness through engagement and innovation. To learn more, visit phaware.global.
Offers resources and support to people living with scleroderma and their families. They have a nationwide network of 20 active chapters and more than 160 support groups, a toll-free helpline, a quarterly magazine, and a variety of brochures, booklets, and newsletters, as well as an informative website. To learn more, visit scleroderma.org.